I have entered a new phase of my life with MND. I’ve now ‘had it’ for 2yrs 9 months. I’m certainly not early stage and I’m not advanced stage either but I feel like I am in the middle stage, the stage where shit has started to get real. Don’t get me wrong, I know it gets a whole lot worse, but a number of things have declined over the last 6 months. I continue to try and make the most of life and my bucketlist slowly keeps going but I’m acutely aware that my happy-go-lucky adventures are over. Every footstep takes careful planning.