Despite the obvious I consider myself very lucky. I’ve travelled the world, been to events many people can only dream of but most of all I am blessed with such loving and caring friends and family, who in my hours of need have really stepped up.
I have entered a new phase of my life with MND. I’ve now ‘had it’ for 2yrs 9 months. I’m certainly not early stage and I’m not advanced stage either but I feel like I am in the middle stage, the stage where shit has started to get real. Don’t get me wrong, I know it gets a whole lot worse, but a number of things have declined over the last 6 months. I continue to try and make the most of life and my bucketlist slowly keeps going but I’m acutely aware that my happy-go-lucky adventures are over. Every footstep takes careful planning.
Remember when I said I wouldn’t leave it so long to write, well that was a load of rubbish because it’s been over two months! Even my dad has been telling me I’m lazy so here goes. Grab a seat, get comfy, as this might take a while, the last three months have been crazy.
The morning I started writing this blog was one filled with mixed emotions. Firstly happiness as Freddie had slept in till 7.45 and then we had such fun playing with his cars and toys. But then for the first time in a while it hit me as to how a fucking unfair MND is and that my ability to play with my son decreases every week. And while I try to treasure every moment with him, life, work and other everyday crap often gets in the way. That said, it’s easy to forget my own worries, when he bumped his head and asked me for a cuddle. I’ll take that any day of the week.
When I wrote my last blog post I swore I wouldn’t leave it as long in between writing because there is always so much to say. Well it’s been just over two months so I’m racking my brain to remember where I got to. Apologies this one is so long. Also, I don’t set out to make these posts upsetting but I’m aware they can be, in fact its always a good reminder for me that MND doesn’t just affect me, but everyone around me, so thank you all for being here, I hope we can have a few laughs at my expense too.
We’ve just returned from a fantastic family holiday in Lanzarote where we stayed at Becky’s bosses (Gareth ‘Cooch’ Chilcott) house for the 3rd year running. As always, Freddie was a dream on the plane, especially on the way out when we were sat on the runway for an hour before take off.
You may have noticed I’ve travelled a lot recently, and now that I’ve made my condition public it might explain why !
I’m not really a possessions type of bloke, I don’t wear expensive watches, shoes or clothes I’m more about experiences… Hence the rather lengthy and extravagant bucket list. I doubt I’ll get through the lot but I’ll give it a damn good go (although when you have MND the price of insurance sky-rockets and that’s before I need any serious assistance) so watch this space.