Today is Global MND Awareness Day. It deserves a whole week or Month but here we are and I appreciate you taking the time to read this post. It’s a bit of a cop out because if you follow me on Twitter you will have seen the content already but it is important that I share this again far and wide.
If you want to follow me on Twitter… Welcome.
I started writing this blog 6 months ago with the intention of writing regularly and making life easier for myself. I failed miserably and for that I apologise. The key thing is to say that 6 months with MND is a long time and so much can and has happened. Crucially I passed my Wheelchair test so I can be let loose on the World and was given a Smartbox communication tablet which quite frankly has revolutionised my life. In fact this blog was written and edited entirely with my eyes !
34 teams of 4 gathered at Brickhampton Golf Complex for the third annual Pain in the ALS Golf Day last Friday. Raising money for the Motor Neurone Disease Association (MND) and for Mike Crisp and his family. Former Worcester and Cheltenham rugby player Crisp, who was diagnosed with the terminal illness in 2016, set up the golf day 3 years ago as a way to raise money for the charity and raise awareness of MND. The event has gone from strength to strength and has a real mix of golfing abilities, from first time golfers to former Ryder Cup players (Peter Baker).